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Thursday, January 22nd, 2009 01:04 pm
I feel as though I've been increasingly falling out of touch with my friends. I also feel that, given that I seem inclined to use this journal as a means of halting that slide out of touch, I'm not posting nearly enough about what's going on in my life. Accordingly, I'm going to attempt to post more, not because I feel guilty so much as because I feel like I've been letting fear of people reading this journal and thinking less of me interfere with my posting to the journal as much as I want to. Don't expect "I just had a tasty sandwich" type posts, still; you can follow my twitter for that stuff, although I may activate LoudTwitter so that stuff gets copied here as a more permanent record of what's been going on in my life on a moment-by-moment basis (in daily summary form). I do hope there will be a bit more of the "here's what I'm thinking about" variety, as well as more of the "here's what's going on in my life on a large scale" variety. Of course, the issue I want to talk about today, my hand health, will probably still serve to reduce my post frequency.

My hands. Still the big thing in my life. For anybody who doesn't know, my chosen career path is programming computers, which requires typing, and many of my hobbies involve spending time at the computer keyboard. For years I've been struggling with pain in my hands and forearms, and it's currently seriously interfering with my ability to work (I'm not currently working), my social life (I used to regularly have 6+ active windows open on some sort of instant messaging client and possibly 2-4 chat rooms as well. I'm now lurking on about 8 IRC channels, but rarely comment, and there are probably only 6 people I've spoken to at all over some form of IM in the last two weeks; I only have two conversations open with serious regularity.), and all sorts of aspects of regular life (I often need help opening jars, shoveling the driveway is seriously painful, and the like). Fortunately, I still get plenty of time when I'm not consciously aware of my pain, and plenty of time where it's only a dull ache, but it's become a major factor in my life now.

What started 10 years or so ago as a highly localized sharp pain in the tendons of my wrists (diagnosis: tendonitis) has now spread pretty far through my body. I'm not honestly sure if it's the same thing or something different and related, or, at this point, if there's only one thing wrong with me. I still get the tendon pain when I type for an extended period of time or if I try to write more than about two sentences, coupled with pain in the muscles across the bottom of my forearm. Working also sometimes leads to pain throughout the back of my hand, in my fingers (particularly the pinkies and ring fingers), and in the muscles up the back of my forearm. Sometimes I also get pain in my elbows (right in the cubital tunnel; the "funny bone" where the ulnar nerve passes through the elbow), and sometimes numbness in the last two fingers of my hands and extending up into my forearm. I have constant tightness in my shoulders under my scapulae, and I've been noticing both tightness and mild pain in my upper shoulders and neck.

As I said, most of this is usually at the kind of dull pain level, but if I, say, try to spend a day typing, it gets noticeably worse. When I've been working regularly, it starts getting to the sort of point where the pain in my arms makes me feel sort of metaphorically as though my brain is on fire, and I have a compulsion to throw things across the room and stop doing anything with my hands immediately.

Needless to say, this makes me somewhat unenthusiastic about any activity which will involve my hands extensively. This of course competes with the fact that almost everything I'm excited about doing involves my hands extensively. There's also the reasonable supposition that this a repeated strain injury, so continuing to do the things which cause the strain will exacerbate the injury.

In medical terms: I have the old tendonitis diagnosis, a more recent diagnosis of "RSI", and tests have demonstrated bilateral ulnar neuropathy (both of my ulnar nerves have been damaged, presumably due to being compressed in the elbow).

In the last couple of years I've tried all sorts of lifestyle changes, including a number of ergonomic improvements, behavioral changes, physical and occupational therapy, massage therapy, reducing the amount of typing I do, taking occasional periods of disability leave from work, losing my job, spending months doing pretty much nothing except watching TV (sometimes supporting the weight of a book and holding it open puts noticeable strain on my hands; TV is one of the only things I can come up with which is physically undemanding and at least somewhat mentally stimulating). The rest stuff seems to help in lessening the pain. The pt didn't have any discernible effect on my ability to work.

We're now talking surgery to relocate the ulnar nerve, hoping that will reduce future damage and maybe allow some things to heal; but we've been talking that for a while and it's been very slow to manifest (though it may happen soon now). The good news is that I've started seeing a new PCP, and so far (a week), he's actively giving me referrals which insurance seems to be good about honoring, so we're exploring new avenues again. It feels good to be moving forward.

I have the nasty habit of assuming people mean the question and answering honestly when someone asks how I am, which means anybody who's done so has heard some subset of the above, probably in a comparably complaining tone. It's a fact of my life right now: my hands (and arms, and shoulders, and neck, and back) hurt, a lot, and it's seriously screwing with everything I do. I try not to dwell on the pain, or the frustration, but...it's pretty central right now. Along with the looming monetary difficulties due to losing my job and not being in a good place to start a new one. And the frustration at being rather halted in my career path right now.

Plenty of stuff is going well, too. Maybe I'll talk about some of it the next time my pain is mild enough I feel like I can write a couple pages of text without it being a serious strain.
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Thursday, January 22nd, 2009 06:49 pm (UTC)
Well, it is good to hear from you, even if the hearing, she is not so good. *hugs*
Thursday, January 22nd, 2009 07:13 pm (UTC)
Eons ago, I had a friend who had the nerve relocation surgery along with some heavy tendon work around her elbow, due to a combination of sports injuries and RSI from playing the cello. Worked wonders for her. If you go there, I hope it's as good for you.
Thursday, January 22nd, 2009 07:13 pm (UTC)
I was previously familiar with the broad strokes, but not some of the details. I'm glad to hear you're moving forward in treatment, and I hope the surgery works out -- my grandfather had surgery for his carpal tunnel (acquired, they think, from his retirement hobby of carpentry), and he's experienced almost total recovery from wrist pain as a result. A different surgery than you're considering, obviously, but perhaps comforting to hear of cases where surgery did help with RSI.

Have you looked into voice recognition software for non-work-related typing? Not sure how useful it would be for coding, but for blog posting and IMing you might find it useful, even if it required using Windows for those purposes. Let me know if you're interested: I was recently offered a copy of DragonSpeak 9 (the first one that was good enough for serious business purposes, apparently), which I turned down because it won't run on a Mac, but I'd be happy to pass it along.
Thursday, January 22nd, 2009 11:19 pm (UTC)
Indeed, dictation is not for everyone. I'm amused, though, at the fact that you find the delay from thought to speech more obtrusive than the delay from thought to typing. I probably feel the same way, when it comes to producing written English, but it's in such stark contrast to my mother, who I discuss writing-methods with frequently, and who dictates everything she writes and cannot imagine having to produce the same volume of work by typing (partly because she speaks at >100 wpm and types at about 60-70).

She's the person who offered me a copy of DragonSpeak; she actually stopped using it because it wasn't accurate enough (for legal-document purposes) to replace human-transcribed dictation, and even for emails and informal letters she found herself totally unable to catch the odd (1%) error it did make.
Thursday, January 22nd, 2009 09:48 pm (UTC)
I've been studying nutrition a lot, and since you haven't mentioned diet as a strategy you've tried yet, I thought I'd suggest something that could help.

Omega 3 fatty acids are known to both reduce inflammation and promote nerve health, while the omega 6 fatty acids make them worse. Omega 3 comes from animals that eat more or less natural diets - for instance, wild fish, grass-fed animals and their milk/eggs - and to a lesser extent from certain nuts, seeds, and vegetables. Omega 6 comes from grains, grain-fed animals, and certain nuts and legumes. Ideally you'd want a ratio of omega-6:omega-3 to be very low - 4:1, 2:1, or even 1:1 - but in a modern diet that ratio averages as high as 20:1 and can go up to 40:1 in many cases. You can get dietary supplements of Omega 3, but look for DHC and EPA specifically (these are longer-chain fatty acids that your body needs. You can make these out of ALA - the stuff in flaxseed oil - but that process produces harmful waste products, so it's better to get them directly). You can also get omega 3 enhanced eggs, which are extra tasty in addition to being extra healthy. If you're interested in a more radical approach, brains are specifically very high in omega 3 (although not so much human brains, because humans don't generally eat a natural diet).
Friday, January 23rd, 2009 01:18 am (UTC)
By the same token, I'm aware of at least one article that correlated increased nerve pain with high omega-3 content (and found no significant role for omega-6 content, or 6:3 ratio). I think this is still one of those "hotly debated issues" in neuroscience.
Friday, January 23rd, 2009 05:10 am (UTC)
The important thing to note about that study was that the subjects were given their fatty acids in the form of vegetable oils - which contain significant amounts of ALA but no EPA or DHA. As I said above that's problematic because the body needs the longer-chain stuff (ALA has 18, EPA 20 and DHA 22 carbons in a chain) and the process of lengthening the ALA is slow and produces a bunch of nasty byproducts. The authors of the study acknowledge that they did not intend to study the entire family of omega-3s and thus did not include fish oils or anything else with EPA or DHA.

The science of n-3s is actually fairly well-understood - it's just that when the media gets a hold of something they compulsively turn it into a controversy even if it means the science gets elided.
Friday, January 23rd, 2009 04:30 pm (UTC)
Based on how poorly understood neuronal functioning is, I'm not sure we can say that the science of fatty acids is well-understood, at least in conjunction with neurons.

The scientists around here (i.e. my professors) remain unconvinced.
Thursday, January 22nd, 2009 10:29 pm (UTC)
I'm sorry the wrists have been getting worse! That sucks, lots. But it is always good to hear/see your name on a screen.
Thursday, January 22nd, 2009 11:20 pm (UTC)
RSI SUCKS SO MUCH. AUGH. And it's the most boring thing to talk about, too. At least with nasty romantic breakups there's drama to keep it interesting for others.
*much sympathy*
Friday, January 23rd, 2009 09:54 am (UTC)
Thanks. I've made a lot. There's some left but it's milder than it was.

I found that something called Alexander Technique helped me. That and a really detail-oriented physical therapist who actually got down to the bottom of the issue and a piano teacher who changed some of the way I was playing.
Thursday, January 22nd, 2009 11:46 pm (UTC)
Ow. I knew the wrist issues were there, but not how bad they were getting.

I hope something makes it go away. Please?
Friday, January 23rd, 2009 03:36 am (UTC)
It's very good to hear that it looks like the surgery is back on the table as a near-future option. Good luck, dude – seriously.

Also, I have no idea when the next time I'll be in Boston is (my life and scheduling for the next few months are in a bit of flux right now, while I wait to see which grad schools I get interviews with, and, after that, which ones I get to a second round of interviews with (some of which would involve traveling to the schools in question), but once that's more sorted out, well, I know that there is the idea of a trip to Boston sometime in the next half a year.
Friday, January 23rd, 2009 04:15 am (UTC)
I've been through bouts of RSI. It sounds like you've got it worse, but I have had periods wherein it hurt to dance. (Mostly I have problems when I have to hold a frame.) I feel your pain. I hope you and your doctors are able to fix this.

Oh, I'm a literalist too. When I ask how someone is doing, I would rather hear what is really going on, rather than a social lie of "fine". I don't think answering the question asked is a "nasty habit".
Friday, January 23rd, 2009 04:53 pm (UTC)
I'm always happy to hear from you, good or bad. I hope that the surgery does what it can to restore you to full function. Keep us posted as possible?

Miss you already.
Friday, January 23rd, 2009 08:14 pm (UTC)
Not sure if insurance would cover this (mine reimburses $28 for every $40 visit, as an example), but have you considered seeing a chiropractor? I know you have great posture, but that doesn't mean that something isn't out of alignment causing pressure farther up the nerve. Seems like a no-lose pre-surgery option... Just a thought, as it wasn't mentioned in the list of stuff you've tried.

In any case, many *hugs*. I hope your good days outweigh the bad.
Sunday, January 25th, 2009 08:12 pm (UTC)
I didn't realize things had gotten so bad, sorry to hear it. Not sure what kind of keyboard you use, but I'm really digging my Kinesis and have an extra I don't use much, you could try it out for a bit if you wanted.